Thanks to scientific progress, people with thalassemia, a group of genetic blood disorders including anemia, Cooley now live into their 40s and 50s. Not only are people living longer, but their quality of life has increased. Clinical and scientific advances have led to new iron chelating drugs, early diagnosis of organ failure, the understanding of adults living with complications associated with thalassemia (osteoporosis, heart failure, growth hormone deficiency ciency, pulmonary hypertension, and fertility) and promising progress towards the ultimate magic bullet-a cure in the form of bone marrow and cord blood transplants, or gene therapy.
The symposium will be the integration of basic science and clinical research, so that both scientists and clinicians can develop a mutual understanding of recent advances in thalassemia.Patients are also invited to attend the conference and are eligible for price rates. Info@cooleysanemia.org Please email or call 800. 522.7222 for more information.
Thalassemia Action Group (TAG), the only national patient support group for thalassemia patients, there will be a one-day meeting in conjunction with this conference. The meeting will be held on Saturday 24. October from 9:00 am to 5:00 pm, is intended for patients and families to educate their presentations on scientific advances and discussed during the symposium. This is a chance for patients to hear the expert on thalassemia, ask questions and discuss the problems faced by those affected with thalassemia. For more information, please visit or e-mail www.cooleysanemia.org info@cooleysanemia.org. For information about registering TAG meeting, please call 800.522.7222 (ext 205)
Call for Abstracts The deadline for abstract submission is Friday, August 14, 2009. For complete abstract instructions, send an e-mail: cooleys@nyas.org. Key words "Abstract Information" in the subject line, do not need to type a message. User manual will be sent automatically. Any questions, please call 212.298.8681.
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